(This blog was posted today at Huffington Post. It’s amazing how little most of us know about mental illness. Until it hits our families, and from the statistics the likelihood is reasonably high, we turn the other way. Perhaps that’s natural. We can’t worry all the time about every illness we read about. Even as a professor of preventive medicine for part of my career, I had a lot to learn about mental illnesses. It’s worth taking some time, even if your life has not been touched by any form, to learn more about mental health issues and to perhaps find it in your hearts to help others living with them everyday, to support families struggling to find the best solutions, to recognize onset in someone you love earlier than you might otherwise, or to consider it part of your challenge to bring about change.)
Ask Virginia State Senator Creigh Deedsabout his son Austin. He’ll tell you of a “beautiful child” who was “full of love.” Yet Austin (Gus), age 24, stabbed his father multiple times before taking his own life. “Whatever illness took him was so contrary to his nature,” Deeds told CNN.
Onset of serious mental illness in late teens and early twenties is very common and often shocking to the families that experience it. The medical community knows this; researchers know this; millions of families know this and yet we wait for the topic to find its time while millions try to cope. Surely we can do better.
Over 13.5 million adults in the United States suffer from serious mental illnesses, such as schizophrenia, major depression and bi-polar disorder. Approximately 20% of American youth between 13 and 18 years of age experience severe mental illness in a given year, 2.6 million people live with schizophrenia and 6.1 million with bi-polar disorder. The problem is worldwide. Then there are the families who often suffer in silence under a heavy cloud of stigma and fear.
Recent research indicates the rate of medication noncompliance for serious mental illness is upwards of 74 percent soon after initiation, especially among patients withschizophrenia. University of Pennsylvania research indicates that if schizophrenia patients prematurely discontinue the first prescription of antipsychotic medication, then the chances are reduced of them sticking to a medication regimen later.
Of course, many people take medication as prescribed and do well. These are not the patients Xavior Amador, Ph.D., writes about in I Am Not Sick. I Don’t Need Help. Amador describes a neurological condition called anosognosia that prevents many patients with serious mental illness from believing they are ill. He argues that it is not stubbornness or denial in the more common sense that keeps these patients from taking medication. In their heart of hearts, they believe that they are not ill. Rejection of illness is essentially a symptom of their illness.
It would be immoral to allow someone in insulin shock to go untreated. Why is it that we insist on letting people who are so sick that they don’t know they’re sick go untreated? Yet that is what we do in civilized countries around the world. We tell ourselves that if a mentally ill person thinks he is well and doesn’t at the moment appear to present a danger to himself or others, no matter how delusional or fractured his or her grasp on reality, it’s okay to let conditions get worse. If drugs are involved, especially accompanying symptoms like delusions and medicine noncompliance, research indicates that the chances of violence are significantly increased.
Try to get help under these circumstances for someone you love: It’s a nightmare. “Has he threatened to kill himself?” and “Has he threatened to harm someone else?” are two questions to expect. Yet patients who have been hospitalized before after discontinuing medication for serious psychotic disorders, whose conditions deteriorate in predictable ways, especially ones who have become violent, shouldn’t be required to express an explicit threat to self or others before being admitted to a hospital for treatment. It defies common sense to ignore a patient’s history. No wonder so many mentally ill people are homeless or in jail. Such negligence would be grounds for malpractice with other diseases.
Deeds, who is working to help mental health patients and families, puts it this way: “When…it’s been determined that that person is in crisis and needs service, there should not be a possibility that they are streeted.” He added, “That person should receive the treatment they need. It’s absolutely essential.”
As if that struggle isn’t enough for families to deal with, try to find post-hospital assisted living for a stabilized patient when support is needed. Finding such support is an endless nightmare for families and often prohibitively expensive.
Legal efforts at mental health parity with other illnesses and insurance coverage are steps in the right direction. We need more understanding of serious mental illness, greater awareness of its prevalence and a system of hospitalization and after care that does not have as a prerequisite expressed threat to someone’s life. As a society, we need to do the hard work of sorting out what constitutes a pattern of worsening mental health.
It’s time to stop passing the buck. Let’s do the math. The data are in. Look at the statistics. Look at the families in pain struggling to find help. The buck stops at our front doors. It’s time to get up off the cushy sofa of willful neglect and answer the door.
@kathreardon
Professor Reardon- I liked your post. As you know the mentally ill were abandoned long ago in this country. The problem is not money. Many people in extremely expensive max and super max prisons are there primarily because of their mental illness. The issue, as I see it, is that Americans see mental illness as a choice, as something that can be controlled by will. It is an issue of underlying philosophy. Additionally few people are properly diagnosed: the essential distinction between severe and persistent mental illness and SAP mental disorder is simply beyond most people charged with doing the Dx. The level of ignorance of mental illness in the legislators who make the decisions is overwhelming. I have degrees in social work, psych, counseling and was a licensed professional therapist. I worked in prisons, institutions and outpatient. I have little hope for change. I did like your post though. Ron Sons.
I appreciate your frustration. Working in prisons, institutions, you must have seen the worst disfunction that exists.
Why do we put psychotic people together, in over crowded conditions, to reinforce each others psychosis?
Like a house of horrors with an overworked, overwhelmed staff.
I am concerned that by painting in such large brush strokes you may create fear. Linking all violent tragedy to mental illness could lump together an extremely nuanced population.
As a Mom I watched our family unravel when we needed each other the most. My husband chalked up our son’s illness as bad behavior. The stress of rushing to the ER with suicides attempts as being weak.
The overcrowded nightmare of involuntary commitment in Seattle Wa. made it worse, not better. We found a great psychiatrist in private practice who was brave enough to treat our son who was in his late teens at the time. Young men are scary enough without the fear they will stab you etc.
I never gave up. Today my son is 29 years old working on a second degree in computer science. The first degree was in English Literature with a specialization in writing. Medication compliance came pretty early on and probably helped save his life.
Women, mostly Moms, end up as a primary care giver through the worst of times. Our family came apart. Dad walked out, we divorced.
Here is my concern, as a young man, people will fear him. Strong and tall, handsome and talented, he lives with Bipolar I. He is a little different. Will he not get hired because of fear of violence in the workplace? I look more toward creative innovation as an option and live my life as an innovator. The majority of people with serious mental illness live quietly and are not a danger or threat to anyone.
Let’s talk about Autism for a starter and take a look at the epidemic of Methamphetamine. Can you PLEASE not create the impression that all horrific instances of crime are committed by the mentally ill. People will run away in fear.
A strong cohesive family is the only help that we can truly count on. At least one parent, a brother, we were there, we never gave up. The key is sacrifice. To accept the cards we were dealt, not wish for some other life.
Locking people up and shoveling meds at them on a long term basis will never work. That is prison.